Verana Health Partners with Foundation Fighting Blindness to Integrate Genetic Testing Data into Real-world Evidence Research

What You Should Know:

• Verana Health® (Verana), a digital health company helping to revolutionize patient care and clinical research by unlocking the potential of real-world data, and the Foundation Fighting Blindness – the world’s leading organization committed to finding treatments and cures for blinding retinal diseases—announce a partnership focused on providing the life sciences community with deeper and broader data to optimize and expedite clinical trials.
• Under the partnership, the Foundation will provide Verana with de-identified genomics data from its My Retina Tracker® Registry to support clinical research surrounding patients with inherited retinal degenerative diseases.

Optimising and Expediting Clinical Trials

This groundbreaking partnership utilizes the Foundation’s genetic and patient data to support real-world clinical research for inherited retinal degenerative diseases. The Foundation Fighting Blindness offers free genetic testing to individuals with these diseases and links the data with Verana’s population health database. This combined dataset empowers life sciences companies to enhance the accuracy of their clinical research, patient recruitment, and clinician engagement efforts in their mission to prevent, treat, and cure retinal degenerative diseases.

“Genomics data is one of the critical new elements taking us to the next frontier in RWE. With this partnership, we’re now making it possible to not only identify the critical encounters and optimal opportunities for intervention in the ophthalmic patient journey, but can now link those events to specific biomarkers that may hold clues to improved and more targeted therapies,” said Lawrence Whittle, President, Verana Health. “The Foundation Fighting Blindness has been on the forefront of patient advocacy and innovation with the development of its genetic testing program and My Retina Tracker Registry; we are honored to work with them and look forward to helping unlock the enormous potential to transform ophthalmic treatment.”

Verana Health, the exclusive data curation and analytics partner of the Academy’s IRIS Registry, is the primary source of real-world evidence (RWE) in ophthalmology. Through its collaboration with the Foundation Fighting Blindness, Verana will integrate the Foundation’s genomics and patient data, along with the IRIS Registry data, into its client-facing clinical research projects. This combined dataset has various research applications, including patient and site selection for clinical trials, health economics and outcomes research, and medical affairs support.

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